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crash hats ataxia
Posted by justin on 17 Jan 2009
please check out www.thudguard.com or co.uk
cole has had hes now for a week and has helped him with his unsteadyness and myoclonics...
kelly who owns thudguard is available by email to answer any questions, i found her to be very helpfull and she was very understanding with coles needs.....
good luck
1 Comment
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Ann Maxwell replied on 18 Feb 2009 at 09:21
Dear Justin,
I am aware of thudguard.com. They contacted us directly. I agree there are times in the life of a child with epilepsy when a crash helmet is beneficial - even life saving.
Muir had a helmet as a toddler which we used for a number of years in appropriate circumstances. It was provided by the NHS and made bespoke. Because these helmets are available on the NHS MMT has decided not to fund the cost of them through thudguard.com.
Of course, if the availability of protective helmets from the NHS was to change we would reconsider the position. But everything we do is with a view to directing the NHS and other supporting bodies regarding the needs of our children and where possible persuading the NHS and others to meet the cost of these needs. Sometimes we have to fund these initiatives first of all but where efficacy can be evidenced the NHS will more often than not react positively to the need for long term funding.
If we could persuade the NHS to fund our epilepsy alarms we would and believe me, we are working on it. Consultants and nurses across the country now favour epilepsy alarms. They are truly essential and potentially life saving! We just have to prove efficacy and we are on the case but these things take time.
Best wishes as always,
Ann Maxwell
Mother of Muir