MMT is answering up to 80 calls a month from needy families for epilepsy alarms. This is actually a worrying statistic and it has prompted us to think long and hard about how to meet the needs of our families.
Once again we are operating a wait list, currently capped at 100 needy families. The reality is that we are now turning families away, asking them to call back in a few months. We are expecting a large donation mid March from the Marathon of Marathons Trust, which will support the demand for epilepsy alarms for a while but it will not plug the gap indefinitely.
Our Trust and Foundations Manager is pursuing donations in support of epilepsy alarms at a rate of knots. We simply can't keep up as the word spreads and demand grows.
A survey is in progress to establish the effectiveness of the alarm and we are thrilled with the response we have had from our families who have benefited from the support of MMT and an epilepsy alarm. This survey has been constructed in partnership with a hospital in Bolton and we intend to present the findings to Government in due course - maybe one day we will secure a contribution towards funding of this essential epilepsy alarm which makes life so much more bearable for families.
In the meantime, your support in whatever fashion you can think of, would be invaluable. A small donation by way of a standing order every month could make a huge difference to another family. Otherwise, a sponsored walk, talk, diet, dress down day at school - anything, no matter how small will help us to help another family.
Be in no doubt, we need your help!
Please contact Ann- Marie Nelson should you wish to support us.
ann-marie.nelson@muirmaxwelltrust.com
Direct dial 0131 273 5256