We have been silent (a bit) but no less busy.
The statistics we work with are 80 000 children in the UK have epilepsy, of which 30,000 have difficult to control epilepsy and 15,000 are severe.
Sorry! I missed my own deadline. We have been very busy at MMT organising our Alice in Wonderland event in Glasgow
An amendment to our website page regarding vacancies is overdue. With the recent departure of Annie and Karen we have at least one vacancy.
Happy New Year Everyone. My new year resolution is to blog more often! I must confess that you have all been neglected and there is so much to say. I will do my very best to blog at least once a month, so do watch this space and keep in touch.
Muir has achieved so much and I can, and will, recount for you a number of inspiring moments that we have witnessed.
I see so many of our beneficiaries supporting us now with a variety of wonderful fundraising initiatives and it’s great!
I will continue as the face of MMT along side my son Muir.
I realised I already have the beginning of my story as a consequence of raising Muir. And its a good story and I hope it will get better!
Well thats me - guilty as charged! So much for a more regular blog. There simply hasn't been time. I cannot believe how busy we are.
I studied our website statistics today. We were astonished by the number of visitors.
It's been a while since my last blog and we have been busy.
Finally, our Section 23 assessment was reviewed by the Multi Advisory Resource Group (MARG)
Although Muir has a severe form of epilepsy called Dravet Syndrome his epilepsy has been under control for over 18 months now.
Following on from my last blog when life with Muir was out of control because of his behaviour, I have to tell you that a miracle has happened.
The real challenge of childhood epilepsy is not the seizures.
I hesitated before uploading this blog to our website. I write this just one week after being nominated Clarins Most Dynamisante Woman of the Year 2008.