Jack Bell is 22 months old and suffers from uncontrolled epilepsy. He started having seizures at just a few months old and despite trying numerous epilepsy medications, the seizures are still not controlled. At present he is having up to 10 seizures in a day. All the tests so far have come back clear, and he has now been tested for Dravet's syndrome, his parents Catherine and Tony are anxiously waiting for the results.
In order to do something positive, Catherine has joined together with a group of her friends (known collectively as ‘Jack's Belles'!) and is arranging a number of fundraising activities for the MMT, including a Masquerade black tie ball on the 16th May 2009. Already the support has been tremendous and Jack's Belles have had promises of flower arrangements for all the tables, favours for each of the 180 guests and raffle prizes including a BMW pedal car and a top of the range BMW for a weekend, all from local businesses in the Blackpool area. The tickets sold out in just 5 days!
Catherine told us, "Unless you are living with the condition on a daily basis I don't think you can appreciate the stress of daily life. My eldest son Oliver who is 5, is witnessing Jack's seizures and having to deal with them as a normal part of his life. It is heartbreaking to see him stroking Jack's hair during a seizure and we can't do anything to stop them. We need to raise awareness and support each other and do all we can to make our children's lives better."
To purchase tickets or support the event with a donation of an auction item, raffle prize or a cash donation, please contact Catherine on 07515 877909 or email catherine.bell@blueyonder.co.uk
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