Epilepsy Alarms

The Trust began distributing potentially life saving epilepsy alarms to families in June 2003, when the Trust was first launched.   At that time an alarm cost £1000.  Over the years a number of different alarms have been considered by the Trust and we have worked closely with manufacturers to advise on appropriate modifications to the alarms in order to meet the needs of families in the home, rather than nursing staff in hospitals. We have also managed to reduce the retail cost to £640 each.
 
The decision to distribute epilepsy alarms to families was based on the Maxwell's own experience of the alarm and the quality of life it brought for Muir and the rest of the family. The Trust has never advertised epilepsy alarms but over the years word has spread and today we receive requests for up to 80 epilepsy alarms in any one month.
 
Whilst the Trust has funded and concluded many different projects over the years, the distribution of epilepsy alarms is very much on-going. To date we have successfully distributed a total of 1,711 at a total retail cost of over £1,095,040.00 Until recently we had a wait list for epilepsy alarms but thanks to £204,000 very kindly donated by the Hilton in the Community Foundation this wait list has now been addressed, at least for the time being.