Epilepsy Alarms

The Trust began distributing potentially life saving epilepsy alarms to families in June 2003, when the Trust was first launched.   At that time an alarm cost £1000.  Over the years a number of different alarms have been considered by the Trust and we have worked closely with manufacturers to advise on appropriate modifications to the alarms in order to meet the needs of families in the home, rather than nursing staff in hospitals. We have also managed to reduce the retail cost to £741 each.
 
The decision to distribute epilepsy alarms to families was based on the Maxwell's own experience of the alarm and the quality of life it brought for Muir and the rest of the family. The Trust has never advertised epilepsy alarms but over the years word has spread and today we receive requests for up to 80 epilepsy alarms in any one month.
 
Whilst the Trust has funded and concluded many different projects over the years, the distribution of epilepsy alarms is very much on-going. To date we have successfully distributed a total of 2,258 at a total retail cost of over £1,673,178.00.

Now, due to the unprecedented demand for epilepsy alarms, it is with regret that we announce that we have now closed our list.   Parents and epilepsy nurses, should no longer contact the office to request an alarm.  We will review the situation in a few months’ time.

For parents and families already confirmed on our list, this means that you will receive a voucher for an alarm as soon as we have the funds available.