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Beca Davies

Beca Davies

Little Beca Davies is five years old and has a severe form of epilepsy called Dravet Syndrome which has resulted in extreme developmental delay.  Beca has seizures every day.  Helen, Beca's Mum works just part-time as a midwife  in order to be available to care for Beca, whilst Beca's Dad, Stuart, endures daily kidney dialysis as he awaits a kidney donor for a transplant.  

The Davies are an extraordinary family dealing with more than their fair share of difficulties.  As if that is not enough, Helen has decided to organise a fundraiser in support of the work of the Muir Maxwell Trust.  Helen found MMT following an article about our work in You magazine.  The Trust provided Beca with a potentially life saving epilepsy alarm which now sits under the mattress of Beca's bed.  Helen and Stuart can sleep more peacefully now, knowing that the alarm will alert them to Beca's seizure if she has one in the night.

The fundraiser is Helen's way of saying "thank you."

Rather than host a Muir Maxwell Trust Dinner Party in the month of September Helen has decided to organise a charity fundraiser for 120 people (no less!) on Saturday 18th October, 2008.  The event will be held in The Quinns Club in Carmarthen, Wales and will include a buffet and charity auction with entertainment by Elis James, a Carmarthen comedian who is currently performing at the Edinburgh Festival.  Live 60's music will be performed by The Barrow Boys. Corporate sponsorship has been secured by Helen, allowing a discounted ticket price of just £20 each.

Alternatively, you can make a donation via Justgiving.  

With thanks to the Davies and all their supporters from the Muir Maxwell Trust. 

Have a fantastic evening!

Update

Helen and Stuart and their family did an amazing job for us last year in hosting their large fundraising event at The Halliwell Centre, Trinity College.

Entertainment was provided by Elis James, a Carmarthen comedian who performed at the Edinburgh Festival in 2008 and 60s music was performed by The Barrow Boys.

The event raised an absolutely amazing £13,500 and Helen tells us it has inspired a raft of other further events to be held by the extended Davies family.  This remarkable sum is down to the incredible hard work of Helen and her family.  Helen even found time to grab her 15 minutes of fame in an interview on Radio Cymru!

An enormous thank you to the Davies family, their guests and supporters from the Muir Maxwell Trust.